Hope is well, but Hannah Grace has the flu. Hope’s cough is mostly gone, but she has coughed some today. We are staying at mom and dad’s house to keep the sickness away. Hope had a flu shot, but Hannah Grace was praying with Hope on her bed the night before she got a fever. Pray that the flu will stay away from mom, dad, and Hope.
Hope has been working on sitting at therapy. Because she did so well sitting on the side of the mat, the therapist sat her in a regular arm chair. She held her head about half way up while sitting in the chair. You can see pictures in the photo gallery. She sat alone long enough for Nana to take three pictures of her. She maintained her balance front and back.
She is now receiving homebound services from the school system here. This past week she was evaluated by all the therapies available through the system. They mentioned that she needed vision testing. She is using one eye, but we are not sure how much she is seeing out of the other eye. That could be why the TV doesn’t appeal to her. She had terrible vision before. Any decline in the poor vision she had would not be good.
Hope has been making some vocalizations several times this week.
Her physical therapist was pleased with how well she did holding her weight on her arms when propped on her elbows lying on her stomach. She cleared her head to the side which means when her face was straight down, she lifted it and turned it to the side. This is a developmental thing which shows progress we think. She had a good day Tuesday with PT and OT.
This weekend Hope went to the lake. She also went today to Bass Pro Shop to look at all the decorations. She looked around the entire time. Nana and Grandaddy ate in the cafe. They saw some friends we used to go to church with at Centercrest Baptist. They mentioned that their prayer group prays for Hope. It is so nice to know that people are still praying and praying collectively as a group. I still don’t believe God will let all of us praying down. It was a nice day. She rode up the glass elevator, while she was up there, her mouth looked so much like she was trying to say something. Pray that God will release words from her mouth. We know that it is possible for her brain to re-wire. Hope went to look at the Christmas Wonder Land. Hope liked that as well. Our next door neighbor Doug works on the displays there, so they wanted Hope to see his handiwork.
Her progress is slow slow slow, and there is not much to report to carepages. Pray that God will continue rebuilding her brain. I know God is working in her. The last week or so has caused me to regain some hope that Hope can be healed naturally. Certainly God is in control of the natural and the supernatural, but it is hopeful that in years to come, she could be healed naturally if God allows it. Read about Terry Wallis. His story is pretty neat! http://www.msnbc.msn.com/id/13690450/ns/health-health_care
Neuroplasticity is the brain’s ability to regrow or mend itself like an arm when it is broken.
I have a fantastic family that has stood behind me and Hope through all of this storm. I say me because God uses them so much to help me, not only physically with caring for Hope, but in every other way. Mom continues to remind me of things that I know, but I haven’t really thought about much. At times I get so discouraged about Hope’s situation, and mom is there to remind me that Hope is still Hope. She is so different than the Hope prior to her bleed. It is like having a different person in the family. Mom reminds me that the spirit inside of her doesn’t change. No weapon formed against her can stand because she is under the blood of the Lamb. I think of Job, satan could not slay him without God’s permission. Hope is still alive for some reason even if I don’t understand it. Sometimes I feel so hopeless for her and I get irritated that her life has been so negatively impacted by sickness which is because of sin entering the world. I wonder why I have to live with my parents even though I am grown (not that I don’t like them there, I just liked being independent). I wish I could care for my children by myself. Mom gently reminds me that I need to see why God has put me in this situation. I am constantly reminded how Hope is the one that has lost the most. One of the kids will complain about an ailment, and I am reminded of how much pain Hope is in and how small our problems really are in comparison with Hope’s. It is sometimes hard to not be selfish, but mom and my children remind me. Maybe God is trying to whittle the selfishness out of me. He is the Potter, I am the clay. It feels like He wanted to smash the clay and just start over:-) I have also seen my dad’s love for Hope. He works tirelessly for her. There aren’t many men in the world as good as daddy. His commitment to our family is so precious. They have given their life to Hope and to her recovery. Mom told me as a child when I study to pray for God to honor the effort I put into studying by rewarding me with a good grade. Now my prayer is that God will reward mom and dad for all the prayer, love, time, commitment and FAITH they have put into Hope by giving them progress and lots of it.
A mother’s prayer: God, please heal Hope. Let her spirit shine. Lord, you are inside her. We know this because she accepted you at a young age and lived for you. I pray that since you are inside her, you will connect her brain and mend it miraculously. I pray that you will heal her completely. I pray that You will allow Hope to use this illness as a platform to share Yourself with the world. Hope felt You had called her to be a missionary as well, can you work that into Your plan for her. She desired to go abroad and serve you. Please heal her completely. Thank you Jesus, Amen